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www.alzheimers2013.com
This presentation will detail the outcomes
of the Living with Memory Loss Workshop:
Younger Onset Dementia. Facilitated by
Alzheimer's Australia SA for the first time
in 2012, this workshop aimed to provide
accessible education to people recently
diagnosed with Younger Onset Dementia. The
workshop offered information and strategies
with the intention of empowering people to
maintain their independence and activity.
Feedback from participants allowed insight
into the challenges facing people with Younger
Onset Dementia, and has the potential to
inform service providers about the unique
needs of this group. This presentation will
outline the practical benefits participants
received from the workshop, as well as the
areas for future improvement.
In particular, participants highlighted that early
intervention practices traditionally beneficial
for older people do not necessarily translate
to this age group. Feedback showed that the
challenges of memory and thinking changes
are made more complex by loss and grief
associated with employment changes, lengthy
diagnosis, financial burden, role, relationship
and identity change, young children, older
parents, lack of appropriate services and
sexuality changes.
This presentation aims to encourage those
working with people with Younger Onset
Dementia to have frank and open discussions
about these and other issues with their clients,
with the goal of ultimately improving their
wellbeing and liberation.
Grand Ballroom 1
n
seRVIce
tHE ENd OF liFE dEmENtia CaRE
tRaiNiNg PROgRam ­ ENabliNg
ORgaNisatiONs tO dRivE CHaNgEs
iN PRaCtiCE
Prof Barbara horner, Jan Akers,
Heather Freegard
Western Australian Dementia Training Study
Centre (WADTSC), Centre for Research on
Ageing, Curtin University Perth, Western
Australia
Introduction:
The project is a self-directed training initiative.
Participants were assisted to pilot the
program, evaluate its usefulness in guiding
the implementation of improved practice, and
reflect on outcomes. The documented process
is a quality improvement opportunity.
Background:
The End of Life Dementia Care Training
Program built on the outcomes of a
Commonwealth Government Palliative Care
Grant (round 5) research project. It was an
initiative of the WADTSC commitment to the
National Priority initiative to improve end of life
care for people with dementia.
aim:
The Training Program enables participants to:
1. Identify and address End of Life needs of
staff and families of people with dementia;
2. Establish and implement a Community of
Practice to improve End of Life Dementia
Care within their workplace;
3. Implement an effective education program
to address the identified issue for staff and/
or families;
4. Identify changes in practice that have