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www.alzheimers2013.com
clientele profile of this memory clinic were
found to differ from other data sets in having
lower education levels, more males, higher
MMSE scores, and fewer dementia diagnoses.
In summary, an open referral policy led to a
significant proportion of clients being self-
referred, and many of these were diagnosed
with cognitive impairment. These findings
suggest that nurse-led clinics with open referral
policies may overcome some of the barriers
to early diagnosis for people with cognitive
impairment and their family and/or carers.
Chancellor 7
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ReseaRch 2
ExPlORiNg tHE ExPERiENCE OF
yOuNgER ONsEt dEmENtia: FiNdiNg
mEaNiNg iN tHE FaCE OF lOss.
elizabeth Yuile
This paper will present two case studies from
research currently being undertaken as part of
a PhD. The research is a small scale, qualitative
study exploring the subjective experiences of
younger people with Alzheimer's disease using
narrative inquiry methodology.
As a counsellor with a special interest in
the field of loss and grief, the researcher
has focused on the changes and losses
encountered in the course of the younger
person's illness and the impact of those
losses. Linked to these broad themes is an
interest in the way participants find meaning
through the construction of personal narratives
that help them to make sense of their illness
experience. This draws on Neimeyer's (2000)
notion that when people encounter loss, they
`re-write' their life stories in order to construct
a more coherent sense of self which is able to
assimilate changes that come with loss.
The presentation will reflect in depth on the
narratives of two participants, highlighting
some of the major themes that the researcher
has identified from the interview data. These
themes include the impact of the illness on the
person's sense of self, the way participants
have found meaning in their illness experience,
what has helped individuals cope day to
day and the impact of relationships on the
interviewee's experience of Dementia.
Neimeyer, R.A. (Ed). (2000). Meaning
reconstruction and the experience of loss.
Washington, D.C.: American Psychological
Association.
Grand Ballroom 3
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LIBeRaTION
sECuRE dEmENtia uNits aNd
tHE REstRiCtiONs ON PERsONal
libERtiEs iN agEd CaRE
anita smith
Chair, Australian Guardianship and
Administration Council, and President ­
Guardianship and Administration Board,
Tasmania
Description of Content:
· Is informal detention in a secure dementia
unit `in the person's best interests,' `a
necessary evil' or an `unlawful deprivation
of liberty?
· Is the restriction of a resident's use of
tobacco and alcohol in Aged Care facilities
necessary for compliance with other laws
and duties or is it an `arbitrary deprivation of
property'?
Now that Australia is subject to the UN
Convention on the Rights of Persons with
Disabilities, those questions are likely to be
played out in our Courts in the near future,
because no sustainable legislative response
has yet been developed.